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Q&A with the Change Makers at the Forefront of Patient-Centricity
COSMO’s senior consultant in Washington DC, Emi Yasukawa, reports on the EyeforPharma Patient Summit USA held October 2 – 3. At the two-day summit in Philadelphia, pharmaceutical industry professionals and patient advocacy groups gathered to share their insights move the industry forward.
In this article, I am honored to share insights and takeaways from three change makers. The following are three key takeaways that will help us form our next moves regarding patient engagement:
John Linnell, COPD Foundation, US COPD Coalition
John was diagnosed with COPD in 2005 at the age of 50. Now, he has been serving numerous patient advocacy positions, at both national and international levels.
John is a member of the Board of Directors for the US COPD Coalition, the Executive Board of Directors for EFFORTS, and the Governing Board for the COPD Foundation PPRN (Patient Powered Research Network). John also sat as a patient reviewer for the United States Department of Defense Peer Reviewed Medical Research Program for several years. John is also finishing a study funded by the Patient-Centered Outcomes Research Institute at Johns Hopkins University School of Medicine, entitled, “Impact of a Peer Support Program Amongst COPD Patients and Their Caregivers.” The outcomes and results are currently being prepared for publication in a peer reviewed medical journal which will list him as a co-author.
Lode Dewulf is trusted as a global thought leader for patient engagement in medicine development. He currently works as Chief Patient Officer at Servier, a foundation-governed global pharmaceutical company.
Lode Dewulf, MD, DPM, FFPM, Chief Patient Affairs Officer, Servier
When Dr. Dewulf studied and practiced medicine, he quickly realized that true engagement, with the patients and their families, are at least as important as good medicine in achieving the best health outcomes. He joined the pharmaceutical industry in 1989 to create a broader impact through medical education. Ten years later, when the internet started to grow as a new way to provide quality medical information, he took a sabbatical and co-founded PlanetMedica, Europe’s first healthcare portal. Dr. Dewulf continued in global executive leadership roles in pharmaceutical medical affairs. In 2012 at UCB, he became Chief Patient Affairs Officer, the industry’s first executive dedicated to patient affairs. Dr. Dewulf volunteers his time supporting individual patients and advising both private and public organizations about patient engagement.
US COPD Coalition、 COPD Foundation ジョン・リンネル氏
リンネル氏は、2005年、50歳の時にCOPDと診断され、現在では米国内および国際的に数多くの患者活動の役割を担う。
US COPD Coalition、Emphysema Foundation for our Right to Survive (EFFORTS)、およびCOPD FoundationのPatient Powered Research Networkの理事会で委員を務め、米国国防省のPeer Reviewed Medical Research Programでは患者査読者として数年間活躍。ジョンズ・ホプキンズ大学医学部のPatient-Centered Outcomes Research Instituteが資金提供をしている研究”Impact of a Peer Support Program Amongst COPD Patients and Their Caregivers”にも参画。研究結果は、医学雑誌に掲載予定。
EyeforPharma Patient Summitでリンネル氏は、氏が数年にわたってかかわってきたアストラゼネカ社によるCOPD患者対象のPatient Partnership Programについて発表した。リンネル氏にCOPDの患者参画活動とその活動の日本人患者にとっての示唆についてお聞きした。
畑中和義
1968年から2006年まで、製薬会社（山之内製薬・アステラス製薬）勤務。（株）畑中ファーマ・コンサルティング代表、香川大学大学院地域マネジメント研究科教授、東邦薬品監査役等を歴任。2014年より「全てのサービスは患者のために」をミッションとするNPO法人JPPaC理事長。NPO活動を通じて、難病・がんサバイバーなどの方々などから、「患者」とは、「患者中心の医療」とは、を学んでいる。
所属：
Q: NPO JPPaCは、日本で開催されるeyeforpharmaに参加している患者アドボカシー団体と伺います。JPPaCでの取り組みについて、そして、日本の患者アドボカシー団体として、 「なぜいま」 patient-centricityの重要性を再認識し、実践に移す必要性があるとお考えですか？
Kazuyoshi Hatanaka, Chairman of Japan Partners for Patient-Centric Care (JPPaC)
Mr. Kazuyoshi Hatanaka has vast experience in the pharmaceutical industry and worked from 1968 to 2006 at Yamanouchi Pharmaceutical Co., Ltd, which merged to become Astellas Pharma Inc. He was also a management consulting professional at Hatanaka Pharma Consulting, a Professor at Kagawa University Business School Graduate School of Management, and an auditor at Toho Pharmaceutical.
Since 2014, Mr. Hatanaka serves as the Chairman of an non-profit organization (NPO) called Japan Partners for Patient-Centric Care (JPPaC), whose mission is “The needs of the patient come first”. Through his NPO activities, he is learning from survivors of intractable diseases and cancer, regarding what it is to be a patient, and how should “patient-centric medicine” be defined.
Current titles: Chairman of Japan Partners for Patient-Centric Care (JPPaC) and Specially Appointed Professor, Graduate School of Pharma Management, Japan University of Economics
Q: We have heard that your NPO, JPPaC, is a patient advocacy group that will be participating in eyeforpharma Japan. We would like to ask you about JPPaC’s activities, as well as your thoughts on your timing of re-acknowledging the importance of patient-centricity and putting it into practice as a patient advocacy group in Japan – why now?
ロード・ドゥウルフ氏は、医薬品開発における患者参画のアドバイザリーを行う国際的なリーダー。現在、非営利財団が運営するグローバル製薬企業Servier社でChief Patient Officerを務める。
医師として臨床に携わっていたころ、患者のより良いアウトカムを達成するには、患者と家族とのエンゲージメントは少なくとも医薬品と同等の重要性があることに気づき、医学の教育を通じて幅広く貢献するため、1989年に製薬業界に参画。10年後、質の高い医療情報を提供する手段としてインターネットが普及するようになり、長期休暇を取得して欧州初のヘルスケアサイト「PlanetMedica」を共同開設。その後、製薬企業のメディカルアフェアーズ領域において、グローバルな役員職を歴任。2012年にはUCB社のChief Patient Affairs Officerに就き、業界初の患者関係担当の役員となった。
現在、ボランティア活動として、個人の患者さんをサポートし、民間・公的機関に対し患者エンゲージメントに関するアドバイスを行っている。
“Frontiers of Global Health Beyond ‘Access to Medicines’” Global Health Forum was held on February 22, 2018 at the Tokyo American Club. The global health forum was co-hosted by COSMO and Management Science for Health (MSH), a non-profit organization based in Washington D.C. Approximately 60 people, including medical doctors, pharmaceutical industry representatives, researchers, students, and officials from the Ministry of Foreign Affairs participated and discussed the issues facing access to medicine and medical services in developing countries.
