Q&A with the Change Makers at the Forefront of Patient-Centricity
COSMO’s senior consultant in Washington DC, Emi Yasukawa, reports on the EyeforPharma Patient Summit USA held October 2 – 3. At the two-day summit in Philadelphia, pharmaceutical industry professionals and patient advocacy groups gathered to share their insights move the industry forward.
In this article, I am honored to share insights and takeaways from three change makers. The following are three key takeaways that will help us form our next moves regarding patient engagement:
The industry is shifting from working for patients, to working with patients.
Many patient groups voiced concerns that research conducted without their direct involvement was incongruent with patient needs. Involving patients throughout the development process will give profound insights into how the disease is understood. John Linnell, a COPD patient and director of the US COPD Coalition, aptly summed this up, “If it is without us [patients], it is not about us.” Read John’s interview on his involvement as a COPD patient »
There is synergy between patient and employee engagement.
EyeforPharma polled the audience about their beliefs about where patient centricity begins; 70% of attendees responded that patient centricity begins from a top down and then bottom-up approach.
Dr. Lode Dewulf, Chief Patient Affairs Officer of Servier Group, says that it is important not to create a standardized approach to internally organize for patient engagement, noting that the first step is to understand the very specific needs and aspirations of the company. Read Dr. Dewulf’s perspectives as Chief Patient Officer »
Patient engagement involves more than patients; it involves their families, patient groups, healthcare professionals, caretakers and the community.
Kazuyoshi Hatanaka, Chairman of Japan Partners for Patient-Centric Care (JPPaC), strives to improve pharmaceuticals for patients. Historically, patients were seen as consumers of pharmaceuticals; however, Mr. Hatanaka’s NPO is expanding the circle of patient centricity in Japan and bridging dialogue between patients, patient advocacy groups, pharmaceutical companies, and HCPs. Read Mr. Hatanaka’s insights on patient engagement in Japan »
John was diagnosed with COPD in 2005 at the age of 50. Now, he has been serving numerous patient advocacy positions, at both national and international levels.
John is a member of the Board of Directors for the US COPD Coalition, the Executive Board of Directors for EFFORTS, and the Governing Board for the COPD Foundation PPRN (Patient Powered Research Network). John also sat as a patient reviewer for the United States Department of Defense Peer Reviewed Medical Research Program for several years. John is also finishing a study funded by the Patient-Centered Outcomes Research Institute at Johns Hopkins University School of Medicine, entitled, “Impact of a Peer Support Program Amongst COPD Patients and Their Caregivers.” The outcomes and results are currently being prepared for publication in a peer reviewed medical journal which will list him as a co-author.
ObaQ&A with the Change Makers at the Forefront of Patient-Centricity: COPD patient-involvement activities
Lode Dewulf is trusted as a global thought leader for patient engagement in medicine development. He currently works as Chief Patient Officer at Servier, a foundation-governed global pharmaceutical company.
Lode Dewulf, MD, DPM, FFPM, Chief Patient Affairs Officer, Servier
When Dr. Dewulf studied and practiced medicine, he quickly realized that true engagement, with the patients and their families, are at least as important as good medicine in achieving the best health outcomes. He joined the pharmaceutical industry in 1989 to create a broader impact through medical education. Ten years later, when the internet started to grow as a new way to provide quality medical information, he took a sabbatical and co-founded PlanetMedica, Europe’s first healthcare portal. Dr. Dewulf continued in global executive leadership roles in pharmaceutical medical affairs. In 2012 at UCB, he became Chief Patient Affairs Officer, the industry’s first executive dedicated to patient affairs. Dr. Dewulf volunteers his time supporting individual patients and advising both private and public organizations about patient engagement.
ObaQ&A with the Change Makers at the Forefront of Patient-Centricity: Accelerating the cultural change toward patient-centricity
Kazuyoshi Hatanaka, Chairman of Japan Partners for Patient-Centric Care (JPPaC)
Mr. Kazuyoshi Hatanaka has vast experience in the pharmaceutical industry and worked from 1968 to 2006 at Yamanouchi Pharmaceutical Co., Ltd, which merged to become Astellas Pharma Inc. He was also a management consulting professional at Hatanaka Pharma Consulting, a Professor at Kagawa University Business School Graduate School of Management, and an auditor at Toho Pharmaceutical.
Since 2014, Mr. Hatanaka serves as the Chairman of an non-profit organization (NPO) called Japan Partners for Patient-Centric Care (JPPaC), whose mission is “The needs of the patient come first”. Through his NPO activities, he is learning from survivors of intractable diseases and cancer, regarding what it is to be a patient, and how should “patient-centric medicine” be defined.
Current titles: Chairman of Japan Partners for Patient-Centric Care (JPPaC) and Specially Appointed Professor, Graduate School of Pharma Management, Japan University of Economics
Q: We have heard that your NPO, JPPaC, is a patient advocacy group that will be participating in eyeforpharma Japan. We would like to ask you about JPPaC’s activities, as well as your thoughts on your timing of re-acknowledging the importance of patient-centricity and putting it into practice as a patient advocacy group in Japan – why now?
ObaQ&A with the Change Makers at the Forefront of Patient-Centricity: Challenges and Actions Needed for Patient-Centricity in Japan
“Frontiers of Global Health Beyond ‘Access to Medicines’” Global Health Forum was held on February 22, 2018 at the Tokyo American Club. The global health forum was co-hosted by COSMO and Management Science for Health (MSH), a non-profit organization based in Washington D.C. Approximately 60 people, including medical doctors, pharmaceutical industry representatives, researchers, students, and officials from the Ministry of Foreign Affairs participated and discussed the issues facing access to medicine and medical services in developing countries.
ObaHot debate on Health Care Issues in Developing Countries at the Global Health Forum
COSMO is one of Japan’s leading independent strategic communication consultancies.
Established in 1960, COSMO was a pioneer in the field of public relations in Japan. Today, we continue to shape the communication landscape in the fields of Healthcare, Food & Food Science, and Consumer Goods & Services.